Participate in Gout Research | Patients

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The Gout App (GAPP) Study: Information for people diagnosed with gout

Update February 2020: Recruitment for this study has now closed. 
More updates on the GAPP Study coming soon.  

The GAPP Study aims to improve the management of chronic gout via the use of a mobile phone app.

If you would like to have more information on the GAPP Study, or are interested in participating in gout research studies in the future, please feel free to email us at med.gout.app@unsw.edu.au or call us at 1800 931 544. 

If you are an existing participant of the GAPP Study and have any questions or concerns, please do not hesitate to contact us. 

Who is eligible to participate?

People diagnosed with gout who:

  • Are aged over 18 years;
  • Have experienced one or more gout attacks in the last year;
  • Have a smartphone or tablet device and access to the Internet; and
  • Are receiving or going to receive gout medicines from their GP to prevent attacks.

What is involved?

Participants taking part in the research receive one of two versions of a mobile app, designed for patients with gout. They are asked to:

  • Use this mobile app for one year, and record gout attacks using this tool
  • Attend their GP for routine gout check-ups and the pathology service for blood tests at the start, at 6 months and at 12 months of the study, and
  • Complete 3 surveys, including questions about them, their gout and gout treatment, and how gout affects their work and quality of life. They are provided with a web-link to the survey (or posted a paper-based survey, if you prefer) at the start, then again after 6 months and 12 months. It usually takes approximately 30-45 minutes to fill out the survey each time.

What data are collected?

The following data are collected with permission from study participants:

  • Their medical examination and medical history relevant to their gout,
  • Their blood test results to track uric acid and creatine concentrations,
  • Gout attack and other data they entered into the mobile app,
  • Data on how frequently they use the mobile app, and
  • Their data files on the Pharmaceutical Benefits Scheme and the Medicare Benefits Schedule, that tell us about medicines they take and medical services they use relevant to their gout (optional).

We may also interview some particpants at the end of the study, about their experiences with gout and using the mobile app. This interview will take approximately 30 minutes.

With the exception of the participants' time, we do not expect there to be any risks or costs associated with taking part in this study. They are reimbursed for their time with a $30 gift voucher after completing both a blood test and a survey at each time point of the study: the start, at 6 months and 12 months ($90 in total).